Lupus References

Reference materials for lupus research and much more on Rosacea.

Butterfly Traveler
Published by European Lupus Erythematosus Federation and Novartis Pharma. A multilingual medical phrase book for the international traveler. Whether you have lupus or any other medical problem, traveling in other countries will be much easier when you take this little book along.

Control Your Pain!
by Robert Phillips, Ph.D. This easy-to-read booklet offers 144 concrete strategies for reducing and managing the pain of lupus. Balance Enterprises, Inc., 1996.

Coping with Lupus
by Robert Phillips, Ph.D. This new revised edition provides expanded chapters and additional topics, as well as more extensive information and resources on living with lupus.

Disability Handbook For Social Security Applicants
by Douglas Smith. The handbook helps people get their disability benefits promptly, without unnecessary appeals. This book tells you what you have to prove and how to prove it.

Get to Sleep
by Robert Phillips, Ph.D. Written in simple straightforward style, this easy-to-follow action guide teaches you the most effective strategies for enabling you to get the sleep you want and need!

Living Well, Despite Lupus!
by Robert Phillips, Ph.D. This booklet offers 204 surefire strategies for taking charge of your life to enable you to live well. Balance Enterprises, Inc., 1996.

Loopy Lupus Helps Tell Scott's Story About a Disease Called Lupus
A young boy's story of lupus and how he lives with it, as told by his illustrated friend Loopy Lupus. Dedicated to all the children and their families affected by lupus. Lupus Foundation of America, Inc. 2002.

Lupus Erythematosus: A Patient's Guide
by Daniel J. Wallace, M.D., F.A.C.P., F.A.C.R., Bevra H. Hahn, M.D., and Francisco P. Quismorio, Jr., M.D. This booklet can help you understand what lupus is, how it may affect your life and what you can do to help yourself and your doctors better manage your lupus. Includes a glossary of terms and sections on diagnosis, symptoms, treatment and coping. Lupus Foundation of America 2000.

LUPUS: Everything You Need To Know
by Robert G. Lahita, M.D., Ph.D. and Robert H. Phillips, Ph.D. Resource written for patients that want to learn more about lupus than what their doctors may or may not tell them.

Sick and Tired of Feeling Sick and Tired (New Edition)
by Paul Donoghue, Ph.D. and Mary Siegel, Ph.D. Written in simple terms, the authors offer all readers, people with invisible chronic illnesses (ICI's), spouses, friends, family members, employers or health care providers, both understanding and practical guidance. This is a very useful resource for all those who live with invisible chronic illnesses and those who care for and about them.

Successful Living With Lupus: An Action Workbook
by Robert H. Phillips, Ph.D. This spiral-bound workbook offers strategies for living a happier life by working on your body, symptoms, thinking, emotions, self-esteem, relationships, and lifestyle. It offers a positive and empowering approach to living for those who suffer with lupus.

The Lupus Book (Revised and Expanded Edition)
by Daniel Wallace, M.D. This second edition is packed with useful, easy-to-understand information and practical guidance for people with lupus, their family members, friends and physicians. Included are new sections on undifferentiated connective disease, newer immunosuppressive therapies, osteoporosis, the use of herbs, and selective Cox-2 inhibitor medications. This hardcover book explains virtually every aspect of the disease and will help people better manage their day-to-day fight with lupus.

We Are Not Alone: Learning To Live With Chronic Illness
by Sefra Kobrin Pitzele. Complete and comprehensive, this book is about redesigning your life...about how to live better, not just differently.

When Mom Gets Sick
by Rebecca Samuels, 1992. Written and illustrated by a 9-year old, this compelling story is based on the experiences of a sensitive and insightful young girl who makes the best from what could be a devastating situation.

A Delicate Balance-Living Successfully with a Chronic Illness
by Susan Milstray Wells.

Are You Tired Again...I Understand
by Marilyn Deutsch, Ph.D. Mari-Sue Productions 1996.

The Art of Getting Well: A five-step plan for maximizing health when you have a chronic illness
by David Spero, R.N. Hunter House Inc. Publishers, Alameda, CA, 2002.

Celebrate Me! A Story to Foster Self-Esteem
Story and illustrations by Lynda Farrington Wilson. Distributed by NeoStrata Company, Inc., 2001. A fun, imaginative and useful book to aid both children and parents in gaining self-acceptance of the child's skin conditions.

The Chronic Illness Workbook: Strategies and Solutions for Taking Back Your Life
by Patricia A. Fennell, MSW, CSW. New Harbinger Publications, Inc., Oakland, CA, 2001. A comprehensive long-term coping model that shows how you can integrate your chronic illness into a balanced and meaningful life.

Finding The Way Home: A Compassionate Approach to Illness
by Gayle Heiss. QED Press, Fort Bragg, CA 1997.

God's Plan Included Lupus
by Doug Rodgers.

Guarded Prognosis: A Doctor and His Patients Talk About Chronic Illness and How to Cope With It
by Michael Lockshin, M.D.

Handout on Health: Systemic Lupus Erythematosus
Free. Published by the National Institutes of Health/National Institute of Arthritis and Musculoskeletal and Skin Diseases.

House Calls: How we can all heal the world one visit at a time
by Patch Adams, M.D. Robert D. .

Inside Fibromyalgia
by Mark J. Pellegrino, M.D.

Learning About Lupus: A User-Friendly Guide (Second Edition)
Published by the LFA, Delaware Valley Chapter, now the LFA, Southeastern Pennsylvania Chapter, 1997.

Living Well With a Hidden Disability
by Stacy Taylor, M.S.W., L.C.S.W. and Robert Epstein, Ph.D. New Harbinger Publications, 1999.

Lupus and You
by Eric Schned, M.D. 1997.

Lupus: A Patient Care Guide for Nurses and Other Health Professionals
Free. Published by the National Institutes of Health/National Institute of Arthritis and Musculoskeletal and Skin Diseases.

Lupus: A GP Guide to Diagnosis
Compiled by Yvonne Norton. 2000.

Making Sense of Fibromyalgia
by Daniel J. Wallace and Janice Wallace.

Meeting the Challenge: Living with a Chronic Illness
by Audrey Kron. 1998.

New Hope for People With Lupus
by Theresa Foy DiGeronimo, M.Ed.

Numb Toes and Aching Soles: Coping With Peripheral Neuropathy
by John A. Senneff.

Power Nutrition for Your Chronic Illness
by Kristine Napier. MacMillan Publishing, 1998.

Questions & Answers About Sjogren's Syndrome
Free. Published by the National Institutes of Health/National Institute of Arthritis and Musculoskeletal and Skin Diseases, 2001.

The Challenges of Lupus: Insights and Hope
by Henrietta Aladjem.

The Fibromyalgia Help Book
by Jenny Fransen and I. Jon Russell.

The Many Shades of Lupus: Information for Multicultural Communities
(Replaces "What Black Women Should Know About Lupus".) Published by the National Institutes of Health/National Institute of Arthritis and Musculoskeletal and Skin Diseases, 2001.

SALUD! A Latina's Guide to Total Health
by Jane Delgado, Ph.D. HarperCollins Publishers, revised edition, 2002. Featuring new resource lists of relevant books and new hotlines and organizations that can help keep Latinas informed and healthy, this revised edition of SALUD! addresses with great sensitivity the special concerns of Latinas-physiological, cultural, and spiritual.

The Stress Management Handbook: Strategies for Health and Inner Peace
by Lori A. Leyden-Rubenstein, Ph.D.

The Wild Woman's Guide To Living With Illness
100 pp. spiral bound journal & three audiocassettes by Cindy Coney.

Total Relaxation: Healing Practices for Body, Mind & Spirit
by John R. Harvey Ph.D.

Taking Charge of Lupus: How to Manage the Disease and Make the Most of Your Life
by Maureen Pratt, David Hallegua, Daniel J. Wallace

The First Year - Lupus: An Essential Guide for the Newly Diagnosed
by Nancy C. Hanger, Elena Massarotti

New Hope for People with Lupus: Your Friendly, Authoritative Guide to the Latest in Traditional and Complementary Solutions
by Sara J. Henry, Theresa Foy Digeronimo

The Challenges of Lupus: Insights & Hope
by Henrietta Aladjem

The Lupus Book: A Guide for Patients and Their Families
Revised edition by Daniel J. Wallace. Highly recommended. Synopsis: In the only book for non-specialists endorsed by The Lupus Foundation of America, a world-renowned expert on lupus explains what the disease is, why it is so difficult to diagnose, and how patients can ease their suffering.

Lupus: Everything You Need to Know
by Robert G. Lahita, Robert H. Phillips highly recommended

Lupus Q&A
by Robert H. Phillips, Robert G. Lahita, Barbara Bus

Talking About Lupus: What to Do and How to Cope
by Triona Holden

Living With Lupus
by Sheldon Paul, Md Blau, Dodi Schultz

Lupus (Facts (Oxford, England).)
by Graham R. V. Hughes

Lupus - A Medical Dictionary Bibliography and Annotated Research Guide to Internet References
by Icon Health Publications

The Language of Water
by Jude Clarke

The Lupus Kid and Other Stories
by Robert Wendell

What Your Doctor May Not Tell You About Autoimmune Disorders: The Revolutionary, Drug-Free Treatments for Thyroid Disease, Lupus, MS, IBD, Chronic Fatigue; Rheumatoid Arthritis, and Other Diseases
by Stephen B. Edelson, Deborah Mitchell

Coping With Lupus: A Practical Guide to Alleviating the Challenges of Systematic Lupus Erythematosus
by Robert H. Phillips

Everything You Need to Know About Lupus (The Need to Know Library)
by Andre Maraux

Lupus: Alternative Therapies That Work
by Sharon Moore

Coping With Prednisone (*and Other Cortisone-Related Medicines): It May Work Miracles, but How Do You Handle the Side Effects
by Julie R. Ingelfinger, M.D., with an introduction by Eugenia Zukerman

Sick and Tired of Feeling Sick and Tired: Living With Invisible Chronic Illness
by Paul J. Donoghue, Mary Elizabeth Siegel

The Lupus Handbook for Women: Up-To-Date Information on Understanding and Managing the Disease Which Affects 1 in 500 Women
by Robin, M.D. Dibner, Carol Colman

Cutaneous Lupus Erythematosus
by Annegret Kuhn (Editor), Percy Lehmann (Editor), Thomas Ruzicka (Editor)

Deadly Drug Interactions: The People's Pharmacy Guide: How to Protect Yourself from Harmful Drug/Drug, Drug/Food, Drug/Vitamin Combinations
by Joe Graedon, Teresa Graedon (Contributor)

The A-Z Guide to Drug-Herb and Vitamin Interactions
by Schuyler W. Lininger Jr. (Editor), George Constantine (Contributor), Steve Austin (Contributor), Forrest Batz, Alan R. Gaby, Eric Yarnell, Donald J. Brown

The 2002 Official Patient's Sourcebook on Lupus: A Revised and Updated Directory for the Internet Age
by Icon Health Publications

Coping With Lupus: A Guide to Living With Lupus for You and Your Family
by Robert H. Phillips

Lupus: My Search for a Diagnosis
by Eileen Radziunas, Jackie Melvin (Editor)

Systemic Lupus Erythematosus
by Robert Lahita

Dubois' Lupus Erythematosus
by Daniel J. Wallace (Editor), Bevra Hannahs Hahn (Editor), Franci Quismorio

A Dictionary for Lupus Patients
by Linda K. Rohner (Editor)

The Oxford Textbook of Rheumatology, Third Edition
This 1300-page textbook on immune disorders covers all phases of lupus and other associated immune disorders such as sclerodoma, rheumatoid arthritis, Sjorjens syndrome, Chronic Fatigue Syndrome, Fibromyalagia, etc. Reviewer reports: "When I was diagnosed with Discoid Lupus Erythematosus and Subacute cutaneous lupus, I ordered this book through my local bookstore. It is recent and authoritative and fairly easy to read and comprehend although due to its length and the variety of immune illnesses covered is slow reading."

The New England Journal of Medicine
(published weekly) has had many excellent articles concerning lupus and other immune disorders and it references other sources of information in its bibliography.

This page was last updated on February 3, 2012 .

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